Due to this, I strugelled for over 2 weeks with swallowing. Fever with a temperature higher than 101.5. After the shot of midazolam, I was willing to put the gown back on along with the anti-clotting boots. Figured I'd chime in with my own experience, since everytime I see posts it sounds like a thyroidectomy is the worst thing in the world and its better just to live with thyroid cancer. . I did not want to be anywhere around my kids or clients. Wednesday and Thursday I continued to improve. I took all my own sheets, towels and wore gloves the first two days. Be careful. My doctor recommends endoscopy to check how the vocal cords and other nerves have healed inside but I am.just not ready to go back to the hospital yet. official website and that any information you provide is encrypted 2022 Oct-Dec;18(4):641-642. doi: 10.4103/jmas.jmas_174_21. When I tilt my face upward and try to swallow, this discomfort is magnified. Before I could not work out as I was to Hypo and the headaches alone were so bad . but now after 2.5 weeks on the meds I have some energy back. Our plan had been for him to get a hotel room to use as a day room while I was in surgery and to use it if they released me way late in the evening. Endocrine Today | A 27-year-old woman with no significant medical history presented to our institution for management of her thyroid cancer. Complications are much less common and can include neck bleeding, permanent hypoparathyroidism that requires ongoing calcium replacement, and damage to . Twenty-eight patients who had undergone thyroidectomy and 28 healthy . his right arm had a deep muscle hurt, like a toothache. After getting checked into the radiation isolation room #625, they brought me my dose of radiation 175 mCi of I-131 t1/2= 8 days. 3 weeks post TT The middle cervical ganglion and the sympathetic trunk lie posterior to the thyroid gland close to the inferior thyroid artery within the thyroid bed (Figure 2). I am not on the hormone replacement therapy pill yet and was told I will be given the radioactive iodine but I have no idea when!!?? . I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. Suffice to say, I was very disoriented for about the next 10 minutes. After thyroidectomy, patients were called by phone in the 1st week and 1st month. Once they do this will it be possible to do strenuous exercise (Boxing / Sprinting etc ) or could that affect my heart? They did look at the CT scan report and told me that all the radiation was in the neck and that was a good thing and the scan looked clean but I will have to wait for the official follow-up with my endocrinologist on the 18th of June for the Official results. I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. Ask for the brand name thyroid drug. He has started scheduling me with weekly appointments. Following Endocrine appt, doc said TSH was too low and decreased replacement (within first 3 months), fought it since it meant dropping below my preablation dose. ; Hemithyroidectomy or thyroid lobectomy: This involves the removal of one of the two lobes of the thyroid gland. 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. I know part of it is because of my cats needing cuddles at 3 am, but I was wondering if anyone else had this problem. None for cancer, but enough to make me a believer in getting a second opinion. 14 Months After Thyroidectomy. J Minim Access Surg. In the morning they brought me what I asked for for breakfast (Cherios, yogurt, and apple juice). I had a nodule in my neck for over two years before I got it tested. Bilateral recurrent nerve paralysis resulting in adduction of the vocal cords is a rare life-threatening complication (occurring in less than 0.1% of cases that requires 2) Did anyone else get post RAI Ultrasounds and show remnant tissue in thyroid bed? Some people experience short-term side effects after thyroidectomy, including the following: Neck pain: You may experience pain on swallowing or breathing for several days following surgery. Growths: Masses, including tumors, cysts and bone spurs, can put pressure on the nerves in your neck, causing pain. Every step of the way I've made sure to get the best of the best, and so many times I've gone to new specialist who have said "you're so lucky you had the surgeon that you did, because he's the best of the best and did a fantastic job". Meeting went good although it was just me S. Cheryl and the leader of the group this time normally they have a few others. I couldn't even have water easily without aspiration/choking. 4) They plan to suppress my TSH which will make me Hyperthyroid. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. Some nurses came and took my vitals and repeatedly asked me a lot of questions, including what type of surgery I was having and my date of birth. One local and one about 50 miles away at a major teaching hospital. I am not sure if TMJ or other dental problem vs the salivary glands. On May 17th I went to Bangor clinic for a update with my primary care provider and we discussed things like my recovery plan and basically made sure that they had a full picture of my current health. Ear surgery went well on the 19th I started getting my hiccups and those lasted 7 days I did manage to get an ear infection on Friday Aug 20 and by Sunday evening I was at max allowed pain meds and it wasnt helping. Some of it still doesn't make sense to me (in that the sequence of logic fails me), but then again I was on strong pain killers for part of the time and I didn't go to medical school. Parathyroidectomy cures almost all cases of primary hyperparathyroidism and returns blood calcium levels to a healthy range. Health care providers perform thyroidectomy to treat thyroid disorders. The other doctor did about 45 thyroidectomies per year. The pain got less and less little by slow. The surgery before me was running late and the clock just kept getting later and later. Today it seems very logical to have asked for something like that, but at the time I was just in the frame of mind to wait. Had a visit to ENT clinic at Madigan and then I did my pre-op for left ear surgery. Everyone was extremely professional, everyone was very nice. He is now also seeing a doctor at cleveland clinic who specializes in thyroid cancer. The bottom line is that as soon I said I'd had a positive FNA and that the nodule was greater than 1cm I was told no. I have a hard time falling asleep and staying asleep. Don't stay in a hotel if you can avoid it after RAI (it really is dangerous to others) and if you do, don't post it anywhere or you will be crucified (however if you search, there are really good posts about how to do it as safely as possible). On April 20th I was informed that the results from Armed Forces institute of Pathology Washington DC and the summary was that the large mass of follicular cells was also cancer. I was visibly nervous, so my anesthesiologist provided me with some drugs to calm my nerves (they later said it did not calm my heart rate one bit), but as I was wheeled to the OR I felt much calmer. So, I expected the experience to be a bit like an assembly line. At home I had only pain pills (as needed) and Motrin (every eight hours) no more IV pain medication. As days pass, I feel that this might not be a good decision. Careers. You can expect to have some pain after surgery. Finally, I told the nurse I was overheating and she suggested taking off the leg squeezing devices. Because I had such an intense spread, my surgical experience was a bit different than others. My experience with thyroid cancer- so far: Everything was great up until the Packer game that didn't go so well for me (much better for the Bears fans around here I could hear cheering). I knew something was wrong last June 2014 talked to my doc about a strange pain in my neck. But, the pain I had last night was sharp. So the procedure was to do partial thyroidectomy, and biopsy during surgery, then removed rest if cancerous. Even one of the nurses asked if I'd had the midazolam yet and the anesthesiologist said, yes. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. Stretching exercises vs manual therapy in treatment of chronic neck pain: a randomized, controlled cross-over trial. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. The muscles in my neck aren't exactly . Source: Images courtesy of Stephanie L. Lee, MD, PhD, ECNU. Once I heard that I was really happy. Anyway - I am still alone in hotel away from Family after RAI. Complications associated are still common and 80% of patients complain of posterior neck pain. The quiet house has really helped me get better quickly. He said he would test the tissue during surgery for cancer. Medicine (Baltimore). An evaluation of the incidence, the typology and predictive factors of chronic pain was carried out at 3 and 6 months after thyroidectomy.A prospective observational study, having included each of the patients prior to their thyroidectomy, was carried out over 12 months. Tender neck : After surgery, it is natural for a patient to minimize . Sorry I know this is long. I also never took any narcotic pain killers after surgery. Two weeks ago I wrote a post about my extreme anxiety preparing for a total thyroidectomy and central neck dissection. An anyone please tell me about possible salivary gland infection, after thyroidectomy and RAI in December 2017. The first time I did it at 75mCi and the second time at 200mCi (lung nodules don't seem to uptake which is annoying, so we tried to hit them with a bunch). I know my body and disagree. Linking evidence to action: I was told to get naked and to put on a gown called a bair paws gown. 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. Also we will have to delay the sleep Apnea testing till after I get my vestibular training done and I can sleep on my back and side. I was diagnosed by chance, I was actually post op on back surgery and I mentioned to my neuro the pain in the back of my neck, he ordered a soft tissue MRI and this was discovered. July 14th Thursday Bangor Dental appointment with x rays my teeth look healthy just needs some cleanings, they also checked to make sure the radiation therapy I had didnt cause any tooth damage, so far so good. I've always had the pain when coughing hard. Some of what I posted before was right after surgery via my smartphone. Stay alone in a separate house if you are able for RAI(it really is hard to keep your distance). Suffice to say, I was a total and complete mess. I was told that I couldn't do radioactive iodine (rai) for six months due to my ct scan (cat scans use iodine for imaging and RAI would not be as effective). Are you sure you want to block this member? Again - very minor things that don't inhibit me from doing what needs to get done. My wife went home to take care of our kids and my mom came in for a couple hours. But the order of operations has gone like this and I wish I knew all this stuff before (FYI I am a 37yo American but in Manila Philippines so am very frustrated/worried about processes or lack there of): Also I had a follow up with my mental health provider. Well low and behold, I am still very radioactive after 8 days to anyone closer than 4'. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. Seriously, I'd managed to get half a sip of water down in what was the most painful swallow I'd ever experienced and I now had to take half a dozen HIV antiretroviral and other pills. The participants were randomly assigned either to the stretching exercise group (n = 40) or to the control group (n = 40). NSAIDs and duloxetine was not effective for these symptoms. Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. My surgeon has me taking 500mg calcium with vit.D along with Tums for my parathyroids (they were left intact during the surgery, but my doctor put me on the calcium as a precaution). Next for me is RAI and then WBS. So, I might be called to come in early. Results. The surgery went well and the next day I was released from the hospital to recover. Jon. They say it looks bigger than it is because its inflamed from surgery and RAI it is 2x1x1 CM in both beds, cancer was only on right. As his caregiver I am feeling so helpless. April 2nd Madigan Surgery Stapendectomy was performed on my right ear. She was confident that these findings appeared after her thyroid surgery. I know this is long but if you are new to this, maybe hearing my story will be helpful. I was also finally getting the follow-ups setup so they could deal with my loss of hearing (Stapendectomy) so I managed to get an appointment with the ENT Clinic. I am 27 years old and was diagnosed with papillary thyroid carcinoma in December last year. God, family, friends and prayer are what got me through these last 7 months with thyroid cancer. I also gained 30lbs last summer. Bookshelf July 26th Another mental health appointment, another good visit he is defiantly happy with how I am doing and we are figuring out that I probably dont need too many more appointments for now at least. September 17th took S. to Madigan for her weight loss surgery; J. came with me to help me through the waiting. It continued for maybe a couple of weeks and always took me by surprise. I also covered the furniture with sheets and cleaned up with soap and water and a dry towel everyday. He also said he would slowly decrease our visits since I am not having the depression issues and I am in a stable mental condition. I only lost 2 lbs on the diet and basically ate rice cakes and carrots for 4 weeks. 7 weeks after TT and like 2 weeks after RAI. Voice affectations after thyroidectomy thyroidectomy surgery side effects 1 Week Post-Op Total Thyroidectomy Had total thyroidectomy Major problems after total Thyroidectomy, very scared =(chest tightness, headache, fatigue - post thyroid surgery Problems swallowing after thyroidectomy. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. Your thyroid gland makes hormones that control your metabolism, body temperature, and heart rate. I am currently taking 275! This cancer also caused me to put radiation through my entire body possibly damaging me AND my family. Questions: call the office on (03) 9347-8786. Those are the same medications they give you for a colonoscopy. The site is secure. 2019 Aug 8;49(4):1185-1191. doi: 10.3906/sag-1812-55. was it there all along? On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours Since then I have had minor vertigo and a small section of my tongue tastes like metal when eating (supposedly this is do to the taste sensor in the ear?). They placed an IV line and took some blood samples. Just allow some water to run over the incision site and cleanse it. Unauthorized use of these marks is strictly prohibited. Over the course of 2 years or more I've been from Doctor to Doctor including my family doc, allergist, gastronologist and orthopedic specialist. After a thyroid lobectomy, you'll need to have your thyroid hormone levels checked and will be prescribed a thyroid hormone replacement, if needed. I will admit it defiantly made me dizzy but I was able to safely drive to work afterwards. Although, I highly recommend going somewhere where you can be alone (not a hotel). I put them on the table so the doctor could see them and very soon after saying hello, I said, these are my questions. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. These symptoms may persist for long . Sent us home & said if it happens again that we need to see the ent in cleveland. This is normal. They said they caught it early though and think they were both stage one cancers. Mid summer I saw and felt a lump on the right side of my neck. I had my TT exactly 2 weeks ago. The possible causes of Horners syndrome after thyroidectomy are surgical damage; postoperative hematoma compressing the cervical sympathetic chain; ischemia-induced neural damage caused during lateral ligature on the inferior thyroid artery trunk; lateral retractor stretching of the cervical sympathetic chain; damage to the communication between the cervical sympathetic chain and the recurrent laryngeal nerve during its identification; and the possible anatomic variation in which the recurrent laryngeal nerve gives off a communicating branch to the cervical sympathetic chain. I'm no singer but I do talk too much, so I was really worried I wouldn't be able to do so for an extended period of time. I had many thyroid nodules but the largest,cancerous one was 3.8 cm. 2. They ran blood tests, no infection or blood clots . Now though my right knee has been making me limp a bit for the past few weeks will have a Dr Appointment while on convalescence leave. I had compression stockings on that kept me up, noise like crazy in the ICU, nurses and doctors coming in, 2 IV (one in each arm), and a blood pressure monitor going off every hour. 2007 Mar;39(2):126-32. doi: 10.2340/16501977-0015. If I can be as much of an emotional and psychological mess as I was and get through it I promise you will be just fine. On the 6th I had my hearing test from my 2nd ear surgery, it came back that my left ear is defiantly almost perfectly recovered (to what bone conduction reads) and said I will not have to worry about hearing aids for a few years at least. Recommendations to newbies: I didn't overly strain, but I did have one day where the pain meds must have overwhelmed the stool softener and I pushed a little harder than I think I should have. 28 April started my normal visits to mental health. Post-op is a bit of a blur. Anyway, I was in a pretty good mood and was really pleased with how I generally felt and was ecstatic the surgery was over. I still do have some hearing loss in my right ear but it is not something to worry about now, although they say in the future I may need a hearing aid. He also informed me that because my mother had a pheochromocytoma, I was at particular risk for MENS syndrome and medullary thyroid cancer and so were my children. I had to cave in and take one of my remaining pain meds. I also feel much more anxious and depressed. Also on the 4th I have a physical therapy appointment with one of the technicians and he did another wonderfully painfully session but the next 2 days there was basically no knee pain. Second time with the larger dose was a little worse, but nothing terrible. Which is what I had expected because that is what I was told. With that in mind, here are 5 things that I think you should know if you've had your thyroid removed based on THIS experience. HHS Vulnerability Disclosure, Help Gen A, elik SU, Gen V, Gkmen D, Tur BS. If I hadn't known about 7 other women who had all gone through total thyroidectomies and RAI with absolutely no lingering symptoms, I would have been freaking out prior to my surgery. I'm considered low risk for recurrence. Simply put, for me, the only option was the traditional open neck procedure; but, I felt better knowing I'd exhausted that possibility. Besides a surgical scar in her neck, a physical exam was notable for left upper lid ptosis and anisocoria with the left pupil having a smaller diameter than the right (Figure 1, lower panel). In January I was beginning to have a hypersensitive gag reflex. Post Operative Expectations. She was initially seen at an outside hospital where she was found to have a nodule in the left thyroid lobe and a metastatic node in the lateral neck, left level II. I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. May 4, 2015 7:40 PM. It will go away. Your thyroid is a butterfly-shaped gland located in the front of your neck. doi: 10.1097/MD.0000000000018309. My throat feels full and I still feel "gaggy" from time to time. I feel very lucky. But I was informed that they would be delay in visits while I was recovering from radiation treatment. I have been constantly monitoring my weight and diet, and have been able to keep it in check till now. She kind of blew me off although she did do a thyroid TSH test and it was "normal". For this is a forever journey I am on! Is RAI 90MCI enough to take out 2 lymphnodes? Horners syndrome was described in 1853 by French physiologist Claude Bernard and then by the Swiss ophthalmologist Johann Horner in 1869. They required me to start out on a liquid diet, which I tore through like crazy (the cherry "ice" was really good). This was a process of 1 10 min neck scan followed by a 40 min full body scan and then a follow-up 10 min scan for an area that wasnt clear on the first scan (guess I moved too much) but I was informed by the tech unofficially that the scans looked clean. July 15th Friday Madigan hearing consult from first ear surgery and pre surgery plans for 2nd ear surgery ENT clinic follow-up from thyroid surgery and the start of the planning for my 2nd ear surgery. Im a pinch over 2 years post thyroidectomy for what turned out to be a couple small areas of PTC. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. A full Thyroidectomy was done 6 days ago. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. Thyroidectomy is the surgical removal of all or part of your thyroid gland. Also, at home, you have to empty and measure the JP drains yourself, and when I had them in my abdomen that as difficult. As my health slowly improves I am starting out my workout regimen again and slowly building my strength back. Do not scrub the wound or put pressure on it with high pressure water or your fingers. At 21yo, fairly advanced cancer (luckily only papillary w/ follicular variant) was about the last thing I was expecting, so that was definitely a fun little discovery. It's hard to raise my head and I couldn't look up at the ceiling. So, that worked out OK. On Thursday night my mom made a very basic Thanksgiving dinner and I was able to eat all of it with no problems whatsoever. My voice was also severely affected but it got better with exercising. The patient reported no radiation exposure to head or neck during childhood, but she had a positive family history of thyroid cancer in two paternal cousins, nontoxic multinodular goiter in her father and sister, hypothyroidism in her mother and hyperthyroidism in her maternal grandmother. She reported left upper lid drooping and showed a recent picture with only the right side of her face flushed in a hot summer day (Figure 1, upper panel). When comparing neck pain and disability scale (NPDS) scores, neck sensitivity and pain with neck movement before thyroidectomy, after 1 week and after 1-month time-points, it was found that patients experienced significantly less pain and disability in the stretching exercise group than the control group (p < .001). I have always preferred water at room temperature. Now, the scar. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. Surgery took 6.5 hours and everything went well. On the 21st while I was in class J. was up at Madigan for some of her medical appointments and while there she picked up S. who got released from the hospital that day and took her to Sylvias house. If they kept me overnight, the plan had always been for him to go home for the night. He got out the floor roll to start working on my leg muscle as well man that hurts. Both doctors answered every question openly and forthright. They seemed as entertained by me as I was them, since most of the patients are far more groggy. On the 16th of September I star my physical therapy, I have defiantly noticed that during and for the next few hours after physical therapy my knees hurt a lot more as expected for the next 4 or so days the pain is greatly reduced and I can walk better. As of august I am no longer seeing mental health, they think Im normal, and I am feeling a lot better. If you have to, ask your doctor about using milk of magnesium (get some and keep it on hand). I am defiantly feeling much more mentally stable after I was put on Synthroid. Just to briefly give my details again. Thyroid function labs were all within normal range. Ylinen J, Takala EP, Nyknen M, Hkkinen A, Mlki E, Pohjolainen T, Karppi SL, Kautiainen H, Airaksinen O. JAMA. That is where my memory starts to come back. Ask for prayers. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). MeSH They said let the steri-strip fall off on its own and it fell off today. Soon after the diagnosis, I underwent total thyroidectomy with right lateral compartment and central compartment dissection on December 28, 2020. I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy. 1) July 21st went to an ENT for sore throat, bad pain when i swallowed, and what I thought was a swollen lymph node, and he told me that is not a lymph node but my Thyroid and I really need it checked. I got about half a sip down and the other half went all over my hospital gown. Could this be from the RAI even 3 weeks after? The patient underwent total thyroidectomy with central and left lateral neck dissection. I went to both appointments with a list of written questions. I don't remember exactly when he left. After two weeks I just showered and shampooed normally. It's a scary place I don't really want to go back to. Know that this cancer is treatable and you will be ok but do not belittle your diagnosis - it sucks- don't neglect your fears they will eat you up. After surgery, you may have a scar at the base of your neck. Nothing too bad though, and apparently I had the biggest dose you can give without being hospitalized, so most people will be getting less. Horners syndrome as described in this case report is a very rare complication after thyroidectomy with fewer than 35 cases reported in the literature, and most cases occur after surgery for malignant thyroid glands associated with lymph node dissection or with surgery for large goiters with retrosternal extension. Anyway this is what is going on now. Has anyone struggled with breathing issues post TT? My mind doesn't wander as much as it did a week ago, and I have a really great appreciation for everyone that cared for me, checked in on me, and helped me in any way through this. In general, thyroid surgery is well tolerated and the vast majority of patients will have a smooth recovery. After about a week or so, the pain was intermittent. You are now HYPOTHYROID. #1. Which on one hand I'm annoyed, but on other hand - if its cancerous GET IT OUT. Keep a log of questions. Next for me is probably clinical trials for this lung stuff + more lymph node removal down the line since those are growing back, but for 95% of you that's not something you'll be having to deal with:) But basically my point in all this is that it doesn't have to be as scary as it's sometimes made out to be. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist.
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